New parent information pack

When a new baby with Down syndrome is born, parents need accurate information which is both current and reassuring. Down Syndrome WA offers a free information pack to new families which will answer many of the questions you may have in these early days and provide you with useful resources and contacts that you can continue to refer to.

Our New Parent Information Pack includes:

  • ‘A guide for new parents’ booklet – a new national resource which explores many of the feelings experienced by new parents, answers common questions and concerns, provides practical hints and useful check lists for you to use and refer to as your new baby settles in and begins to grow and develop.
  • Breastfeeding your baby with Down syndrome booklet
  • A health checklist
  • Down syndrome growth charts and developmental milestones
  • Better Start and early intervention information
  • A copy of ‘Now I See’ – a booklet containing personal stories written by 50 parents from around Australia and New Zealand, of how they came not simply to accept, but to embrace and celebrate life with their child with Down syndrome
  • A copy of ‘Smile’ – a booklet with quotes and photos to make you smile
  • A list of useful resources
  • Information about new parent support groups and workshops
  • Down Syndrome WA pamphlet and membership form (free membership is offered for the first year after your baby is born)

Someone from our family support team is ready to personally deliver a pack to you while you are in hospital or later on at home. This is the ideal way to receive it so we can have a chat and answer any questions you might have about the information or anything else you would like to discuss. But if you would prefer to receive a copy in the mail, just let us know. Call us on (08) 9368 4002 or email

Most maternity hospitals will have a copy of the ‘Guide for New Parents’ booklet which you can look through or borrow from the special nursery or social work department. Contact Down Syndrome WA for your own personal copy, or for the complete New Parent Information pack.

Let us know if you would like us to provide you some information in another language or if you would like us to arrange for an interpreter to come with us when if we visit you. We may also be able to put you in touch with other families who speak your language or let you know where you can find information.