You have probably come to this page because you or someone you know has had a diagnostic test and a pre-natal diagnosis of Down syndrome. We wish you well and understand there is a lot to take in when you find out that your baby has Down syndrome. Please spend some time looking through our website and prenatal resources and finding out what Down syndrome will mean for your baby and you.

Or you may have been told after a screening test that you have an increased chance of having a baby with Down syndrome, and you may be considering having a diagnostic test.

Click here to download the ‘Prenatal testing for Down syndrome’ fact sheet (produced by Down Syndrome Australia) which contains easy-to-understand, factual and balanced information for anyone considering prenatal testing or if a test shows that a baby may have or does have Down syndrome.

In any of these situations it is important to have good quality information and plenty of time to deliberate. Current, up-to-date and balanced information on Down syndrome, examples of lived experiences and links to other non-directive resources and avenues for support can be found both here and elsewhere on our website.

Talk to other parents and find out from them what it is like to have a son or daughter with Down syndrome. Remember that Down syndrome is just a small part of who your baby is and will be, and that no one can predict how much your child, or any child, will be able to achieve.

If you would like to talk to someone from our Family Support Team (also parents of children with Down syndrome), please give us a call. Your phone call will be treated confidentially and you will be given honest, non-directive advice.

If you would like to talk to a parent who, like you, has been through a prenatal diagnosis and can share your current feelings, questions and apprehensions from a personal perspective, as well as experience of the long months leading up to the birth of their baby, we can do that too.

If you are looking for genetic counselling, professional services are available from Genetic Services of WA at King Edward Memorial Hospital.

If you would like a copy of our New Parent Information pack now, or once your baby is born, please contact us at Down Syndrome WA on (08) 9369 4002 or admin@dsawa.asn.au

Resources:

You Tube: Dear Future Mom

(Unexpected) stories of a Down syndrome diagnosis – Prenatal Diagnosis Stories from around the World

Prenatal Testing for Down syndrome – Fact Sheet (Produced by Down syndrome Australia)

New Parent Information Pack

 

It is recommended that whenever prenatal testing is provided in Australia, good quality information and time for prospective parents to deliberate are also included to ensure best practice. Current, up-to-date and balanced information on Down syndrome, examples of lived experiences and links to other non-directive resources and avenues for support can be found elsewhere on our website.

For more information:

Contact your doctor or Genetic Services of WA (GSWA)

http://www.kemh.health.wa.gov.au/services/genetics/

Agnes Walsh House
King Edward Memorial Hospital,
Level 4, Agnes Walsh House,
374 Bagot Road,
Subiaco WA 6008.
Phone: 08 9340 1525
Fax: 08 9340 1678
gswa@health.wa.gov.au
Monday-Friday (except public holidays)
8.30am – 4.30pm