Helping Your Baby Develop

Babies with Down syndrome require the same love, care and attention all babies need.  You can encourage your baby' development by providing:

  • the same opportunities as other family members
  • lots of stimulation -people, places, toys, textures
  • lots of language - talking, singing, reading
  • a safe environment to explore
  • opportunities to meet with other families

 

Developmental Milestones

 

Articles and Information

An Overview of the Development of Infants with Down Syndrome by Sue Buckley and Ben Sacks

A Developmental Journal for Children with Down syndrome

Comparisons of Mosaic and Non-Mosaic Down syndrome

 

Resources

Stray-Gundersen, Karen  Babies with Down Syndrome: A New Parent's Guide

Winders, Patricia  Gross Motor Skills in Children with Down Syndrome: A Guide for Parents 

Bruni, Maryanne  Fine Motor Skills in Children with Down Syndrome: A Guide for Parents

Pueschel, Siegfried  A Parent's Guide to Down Syndrome - Toward a Brighter Future

Kumin, Libby  Early Communication Skills in Children with Down Syndrome

 

Links

My Baby Can!  An 18month developmental calendar and keepsake album for babies with Down Syndrome is available to purchase at www.bandofangels.com/Products/Calendars.aspx

 

 

Gross Motor Skills

 

Activity Ideas

Here are some ideas that can be incorporated into your daily routine when interacting with your child.  As these recommendations are not specific to your child please consult your health professional if you have any questions or require assistance.

 

Tummy Time

Offer tummy time as it strengthens the muscles in your baby's back and neck.  Some children initially dislike this position but will begin to enjoy it if regularly offered short opportunities to practice.  Encourage your child to look to their left and right sides using toys and by coming down to their level, making eye contact and communicating with them.  Over time as your child gets stronger they will be able to use their forearms for support.

 

Carrying Positions

It is good to use a variety of positions to carry your child so that they experience looking to both sides and being in different positions.  Carrying your child upright in the crook of your arm with their legs together and knees bent is a good position for them and allows you to keep one arm free.  Make sure you practice alternating the side on which your child is carried so that they look in different directions.  This can be difficult as most of us have a preference for arms in which we carry children.  Continue to spend time carrying your child cradled in your arms and alternate they way their head is facing.  Carrying your child in the 'superman' position with their tummy on your forearm is also a good alternative position; this provides the same benefits as tummy time.  As your child grows, try to avoid carrying them on your hip with legs one on either side as this puts their hips in a poor position.

 

Positions for Play

Use a variety of positions for play including lying on side (alternate between left and right), lying on back or tummy and supported sitting eg. your arms or high chair.  Doing this gives your child an opportunity to strengthen a wide range of muscles and to view their world from many perspectives.  Once your child is very stable in a position you can encourage hand skills including reaching and playing with toys.  Encourage your child to move in all positions.  If you find that your child has a very strong preference for certain positions, consult your health professional for further ideas.

 

Body Awareness

As your child grows they develop a sense of awareness of their body and control of its movement.  You can assist the development of this skill by moving your child's arms and legs and encouraging them to do the same.  Eg. bringing hands together, hands to mouth, kicking legs, bringing feet to mouth.  Gently massaging your baby's arms, legs and body helps to increase body awareness and can also assist with digestion and bonding.  Helping your child to move within and between different positions eg. rolling, assists them in developing an understanding of how they can use their body to move independently.

 

Assistive Devices

There are many products available which claim to assist in children's development.  These are not essential and some may not be appropriate for child for various reasons.  Your regular daily routines and environments provide the best opportunities for learning for your child.  If you would like further information or advice on which products are suitable for your child please consult your health professional.

 

Articles and Information

Down Syndrome Gross Motor Development

How Can We Develop Our Baby's Gross Motor Skills?

Physical Therapy for Infant and Child by Patricia Winders

Exercises and Stimulation Therapy for Hypotonia

 

Resources

Winders, Patricia Gross Motor Skills in Children With Down Syndrome

 

 

Fine Motor Skills

 

Articles and Information

The Development of Fine Motor Skills in Down Syndrome

To download a booklet on Fine Motor Skills in Children with Down Syndrome by Sandy Alton go to

 www.downs-syndrome.org.uk/resources/publications.html and click on >education and then

>Fine Motor Skills                                                                               

 

Resources

Bruni, Maryanne Fine Motor Skills in Children with Down Syndrome

Selikowitz, Mark Down Syndrome: the facts

Down Syndrome: the first 18 months [DVD + VHS]

 

 

Communication Skills

 

Articles and Information

Speech, Language and Communication for Individuals with Down Syndrome: an overview

Communication Skills and Children with Down Syndrome

Using Sign Language in Down Syndrome: Why teach sign language?

Children with Special Needs Using Sign Language

 

Resources

It Takes Two to Talk

Song Book with Signs

Kumin, Libby Early Communication Skills in Children with Down Syndrome

Kumin, Libby Pathways to Better Speech [DVD]

Babies with Down Syndrome: A New Parent's Guide

Down Syndrome:The First 18 Months

 

Links

Makaton Australia - www.newcastle.edu.au/centre/sed/makaton

 

 

Feeding Skills 

 

Children with Down syndrome can be just as fussy as any other child when it comes to food.  Some young babies will want to drink milk only and are not interested in solids.  Some toddlers only want to eat "mushy" food with no texture.  Some children will want to eat the same thing every day for months.

 

While all of these things can be issues for parents, as long as the child is happy and healthy most nutritionists would advise that you keep offering new foods and eventually they will be accepted.  Most teenagers with Down syndrome eat a wide range of foods.

 

 

Articles and Information

From Milk to Table Foods : A Parent's Guide to Introducing Food Textures by Joan Medlen

Moving Ahead with Food : Matching Oral Motor Skills and Food Textures

Eating Right - A primer for parents of children with disabilities

Picky Eaters - Why it is normal for children to be picky eaters

Supporting feeding and oral development in young children - booklet to download at www.downsyndrome.ie/

Feeding and swallowing difficulties in children with Down syndrome (Frequently Asked Questions)

Oral Motor and Feeding Skills by Sharon Fiocca

Finally, there is help for your picky eater!

 

 

Resources

Ernsperger, Lori and Tania Stegen-Hanson  Just Take A Bite : Easy Effective Answers to Food Aversions and Eating Challenges

Fraker, Cheryl et al.  Food Chaining: The Proven 6 Step Plan to  Stop Picky Eating, Solve Feeding Problems and Expand Your Child's Diet

Medical and Surgical Care for Children with Down Syndrome

Medlen, Joan E.  The Down Syndrome Nutrition Handbook

Sanderson, Sheri  Incredible Edible - Gluten-Free Food for Kids